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Early-Onset FSHD Resources I Found Helpful
I'm still learning too. This page is a collection of resources, research, and helpful shortcuts I've discovered since our FSHD diagnosis, and I'll continue updating it as I learn more. 💙✨
Supporting Students with FSHD at School
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Every student with FSHD has different strengths, abilities, and support needs. Educators who understand the condition can play an important role in helping students succeed both academically and socially.
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The FSHD Society offers excellent resources for teachers, school staff, and families to better understand FSHD and create a supportive learning environment.
Resource for Educators:
🔗 School & Education Resources from the FSHD Society
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"Awareness and understanding help students with FSHD feel included, supported, and empowered to reach their full potential."
College Prep
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Preparing for college with FSHD can bring unique questions and challenges. Explore resources, guidance, and experiences to help students and families plan confidently for the future.
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Learn More →
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FSHD Parents' Roundtable
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Connect with others in the FSHD community through roundtable discussions. These sessions provide opportunities to share experiences, ask questions, and learn from individuals and families navigating similar journeys.
Join Roundtable →
Early Onset FSHDÂ
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